All things Adults: Cerebral Palsy Research Network Adult Initiatives to Advance Care and Knowledge

This course will provide individuals, clinicians, and researchers with an overview of initiatives to address the pressing need for improved practice, knowledge, and treatment options for adults with cerebral palsy. The Cerebral Palsy Research Network has developed a strategy that includes quality improvement, patient reported surveillance, clinical surveillance, fitness programming, creation of a metaverse community, and educational programming. Quality improvement efforts are focused on screening for pain and pain classification and include 4 major medical centers. Patient reported surveillance includes both longitudinal and cross-sectional data. Clinical registry data includes a variety of data fields, including patient characteristics and treatments.MyCP.org has created a virtual community of individuals, caregivers, and clinicians that participate in discussions online and educational programming. Fitness programming, both live streamed group exercise and group online intense mind, exercise, nutrition (MENTOR) classes occur regularly. Educational materials, including the forthcoming Adults with Cerebral Palsy Toolkit have been created.